X-Linked Retinitis Pigmentosa
We are now pre-screening for a phase 2/3 clinical trial for X-Linked Retinitis Pigmentosa. Learn more about the clinical trial or how to qualify for no-cost genetic testing and/or prescreening.
- Young males affected
- <10 years old
- Early onset night blindness
- 45 years old
- Median age patients become legally blind
- Genetic diagnosis rate for RP
If you suspect you have XLRP and are considering a clinical trial…
Talk to your doctor about the potential risks and benefits of participating in an investigational gene therapy trial.
Click here for questions and more information to help guide a conversation with your doctor.
If you have not received genetic testing for your XLRP, please contact your doctor to discuss no-cost genetic testing.
Click here to learn more about how to qualify for our no-cost genetic testing.
If you have already received genetic testing for your XLRP, contact your doctor to obtain a copy of your genetic test report, as well as a copy of your most recent medical and ophthalmic records.
These records will be requested by the investigators to assess your initial eligibility for the trials.